Date archive: May 2013

Today I Cried

I keep myself busy. I think it’s good for my emotional well being and overall quality of life to be active, to feel I have a purpose. It’s very important to me that my family is left with something meaningful. A piece of jewelry, or a memorable household item is nice but I also want them…

My Loyal Friend

I have a wonderful loyal friend that I spend almost every minute of my life with. It’s my little 7 lb toy poodle, Abby. Last year when I knew I would be spending so much time at home, Tony and I decided to get a dog when we sold the house and moved. We already…

I Won’t Be There, I’ll Be Dead

While in the process of working on several projects, primarily for my family to have after my death, I’ll catch myself thinking of being there when they see certain things. I won’t be there, I’ll be dead. It’s only a brief thought before I realize it, sometimes it makes me gasp. It’s the same feeling of momentarily thinking…

What I Miss Before ALS

What I miss before ALS: I miss my independence. I miss having the ability to jump in the car and go. I could just go visit someone, get something to eat, hit up the mall. Even if I didn’t want to go anywhere, which wasn’t uncommon, the fact remained that I could. It was an option…

ALS Clinic Day

I’ve had it rough the past few days. In my last blog post I mentioned not resting before clinic day. I’ve been paying the price for that. To make it worse, Friday was the longest and most intense clinic day I’ve had so far. The great news is my breathing is holding up well. I don’t…

Busy Day

Hello to all… Today has been a busy day for me. This morning I planned to write about preparing for ALS clinic day visits. I’m not going to have time because I’m still getting everything prepared for clinic day now. Something that should have been completed much earlier, but today didn’t go as planned.  I’ll need to…

My Myers – Briggs Personality Type

  Today I want to share with everyone my Myers – Briggs Type indicator MBTI.  I believe it’s usually a pretty accurate description of how a person thinks and why they act the way they do. I know some people see the test as faulty and I’m sure it’s not perfect, but not far from it…

Dying Shouldn’t Be Taboo, Everyone Does It

Ironically, putting myself completely out there with my blog and how I’m dealing with ALS is in a way preserving my privacy, something I cherish. I also believe it’s kept my loved ones informed about a lot of things without worrying about how to ask me a question, worrying if it will upset me. I think this is especially so,…

Death: To Know or Not To Know?

I don’t know how common this is to wonder, but I’m sure it’s crossed most people’s minds at some point. I know it has mine occasionally throughout my life. When and how will I die? And do I really want to know? I think it’s fair to say most people want to live a nice…

An ALS Day

Today didn’t go as planned. It’s been an ALS day. It is Saturday, the day Mom and I do something. We had planned to go see, The Great Gatsby, this afternoon but I had to cancel. I had a rough night all night. I puked in my sleep. Not a lot, but it  woke me right…

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