Date archive: May 2013

Validation of Biomarkers Study in ALS

Yesterday I went to Emory for my Validation of Biomarkers study in ALS. It was also the first time being filmed for the documentary at Emory. Matt Ruggles was filming and I barely remember seeing him there once we were in the room. When we were led to the small exam room, I at first thought it…

My Mother’s Day 2013

This is my 2013 Mother’s Day experience. I hope all Moms felt some extra love today. I spent time with my Mother and my sister, Julie, at her Mother in law‘s home, Patsy. I feasted on tomato pie, squash casserole, baked potato and okra made in a way I’ve never seen but it was absolutely…

The Trilogy 100

I’ve had the Trilogy 100 for about 3 months now. I wouldn’t want anything else. Now I can’t say I did my research and made the decision after lots of comparisons like with my power wheelchair. This is because I’m at a great ALS clinic where they stay on top of all patients and take…

ALS Documentary: Take One, Action!

Hello to all. I’ve been pretty busy the last couple of days. I’ve always been a routine person, but now I’m on the ALS routine consisting of eating, sleeping, writing, visitors, and range of motion exercises from my bed in a room of bare brown walls. I don’t need to leave my room to shower or to look out of my…

Short Post

I planned to blog more tonight but it’s been a nightmare trying to get my photo page in order. Before I started this site, I used a computer to look something up or shop. Tony’s been helping when possible, but he has other things to work on not to mention I don’t like receiving help….

Vacate The Premises

A little about today…. I was pretty tired most of the day but not a lot of pain. My Mother came over to visit. Before she got here we received a call for a house viewing asking for 4:00 to 5:00. So that went from planning to stay home the whole day to we must vacate the…

My ALS Documentary

Hello to all, I haven’t posted anything the last couple of days. I’ve been busy with a couple of things but, today was very important to me. From early on I’ve had the idea of documenting my experiences throughout the course of ALS. I’ve wanted it done in a no holds barred manner. I strongly…

Benign Fasciculation Syndrome

I decided to go with a post about Benign Fasciculation Syndrome (BFS) and what I’ve recently learned about it. So here we go… I have a feeling that most people with ALS have dealt with someone wanting opinions or advice about their muscles twitching. I see BFS come up in searches for about anything ALS related, and I…

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