Date archive: July 2013

It’s Friday

It’s Friday! That used to mean something to me. At a time, years ago, it meant let’s get this party started, later it served as a way to keep my schedule in check with where I stood in days to obligations. Now it’s pretty much just a day. It’s not uncommon for me to be two…

Stem Cell Study

What a day yesterday was! This has been the hardest blog post for me get going with. I’m just going to start right off with why. I am officially in the ALS phase II stem cell study at Emory. Even though I’m officially in the study, Dr. Glass made very sure I am aware that between now and…

Ultrasound of my Diaphragm

It is a rainy Sunday… Since I don’t have to be out in it today, it’s very relaxing to watch the rain falling outside my window. Relaxation is just what I need right now. I have an Emory ALS Center visit this Tuesday. I’m feeling a little nervous so I’m thankful for the calming rain….

Website

Things have been a little hectic lately so I’m going to take a little time for a short update. We’ve had a few hiccups moving to the den, but we will get down there. I’ve had a couple of rough days, mostly not ALS related. The thing is stress can aggravate some symptoms and that has…

A Snake

Let me start with a little backstory… About five or six years ago I was zipping downstairs to the laundry room. I stopped frozen on the last step when I saw a long large snake right in front of the garage door. Like most people, I’m terrified of snakes. I didn’t move for a few minutes…

My New Portable Shower

Do I have the best Husband or what? I wrote in my last post about us moving down to the den and the only real problem was me bathing. We decided a portable stair lift or portable shower were our two options. It didn’t take long to figure out the portable shower was the best choice price…

It’s Time To Move

It’s time to move! I wish that meant moving into a new home but It means moving on down to the den. My husband carries me over his shoulder down the 14 steps of our tri-level home everytime we leave and return. I’ve been concerned about his back, especially because it’s hard to keep good form…

Birding and My Daily Pic

I am almost positive I did it! I spotted my first bird by sound and look, then spotting it with my binoculars. Before ALS I was probably amongst the least knowledgeable people regarding anything nature. I knew of some bird names but never took the time to really notice them. I could identify a few trees, Weeping Willow and…

New Name and Logo

  Hello everyone, for private reasons I will be changing my domain name and logo. I have a temporary logo up now.  It’s something I just have to do. I hope the confusion doesn’t cost me any followers. I appreciate each one of you and hope you stick this out with me. Blogging is so strange….

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