Category archive: family

Family Updates

What a busy past couple of days I’ve had! The best part for me is that it wasn’t all ALS stress busy. Friday was an especially nice day. One of those rare days that the stars align just right. I wasn’t having or feeling particular bad ALS wise, which I have been concerned about for this day….

Dying Shouldn’t Be Taboo, Everyone Does It

Ironically, putting myself completely out there with my blog and how I’m dealing with ALS is in a way preserving my privacy, something I cherish. I also believe it’s kept my loved ones informed about a lot of things without worrying about how to ask me a question, worrying if it will upset me. I think this is especially so,…

My Mother’s Day 2013

This is my 2013 Mother’s Day experience. I hope all Moms felt some extra love today. I spent time with my Mother and my sister, Julie, at her Mother in law‘s home, Patsy. I feasted on tomato pie, squash casserole, baked potato and okra made in a way I’ve never seen but it was absolutely…

Vacate The Premises

A little about today…. I was pretty tired most of the day but not a lot of pain. My Mother came over to visit. Before she got here we received a call for a house viewing asking for 4:00 to 5:00. So that went from planning to stay home the whole day to we must vacate the…

My Birthday Weekend

Hello to everyone. I’ve spent the last few days with family. It has been exhilarating and exhausting. The exhaustion is strange because I haven’t done any more physically than usual. I used to be the one running up and down the stairs and getting things prepared and nothing could stop me. Tony takes care of all…

ALS… A Communication Loss

Hello to all… I didn’t get a post in over the weekend because I also have a project I’ve been trying to give some attention to. I started it a few months after diagnosis. Believe it or not, I get a lot done from my bed doubling as an office, especially with Tony around to…

A Gift of Independence

Hello to all….  I was working on a different post but it will have to wait for another day. I’m too overwhelmed to think of anything else. My Stepdaughter, Tasha, came to visit this evening. She, her husband Billy and the three boys Jesse, Ethan and Uriah came in two vehicles and left in one. They gave us their van!  They…

Great Saturday and More…

I had no intention of blogging tonight but it’s close to 5:00 am and I’m still wide awake so here I am. It’s still Sunday to me even though I know some people are waking for work. Yes, I remember Mondays well. Days seem to blend together now. I know days by Dr. visits and…

My Family Knows Now

HEADS UP –  This post is some info about my family. Not much ALS related but I hope you still read on. I did it!   I told my family about my blog starting with my parents in person. My Mother gave me her 100% approval and thinks it’s great for me. What a relief. She did get in touch with me after…

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