I was surprised to learn the Muscular Dystrophy Association (MDA) has an ALS chapter, and of how much fundraising they do for ALS. You will want to get in touch with them right away too. They also have loaner closets of medical equipment, and it’s my understanding they will financially help up to $500.00 for repairs needed on equipment you already have. They won’t give the money to purchase new equipment. Some examples are power wheelchair repairs, or repair of a broken electrical hospital bed that you rely on to lift up or down. Some of these expenses may not seem like a lot initially, but ALS is a very expensive disease and can bankrupt a financially secure family even with great medical insurance very fast. Unless you come from true wealth you’re likely to need all the support you can get. MDA also publishes a quarterly print magazine QUEST. It is ALS specific, very informative and interesting. I always look forward to it.