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My Myers – Briggs Personality Type

  Today I want to share with everyone my Myers – Briggs Type indicator MBTI.  I believe it’s usually a pretty accurate description of how a person thinks and why they act the way they do. I know some people see the test as faulty and I’m sure it’s not perfect, but not far from it…

Dying Shouldn’t Be Taboo, Everyone Does It

Ironically, putting myself completely out there with my blog and how I’m dealing with ALS is in a way preserving my privacy, something I cherish. I also believe it’s kept my loved ones informed about a lot of things without worrying about how to ask me a question, worrying if it will upset me. I think this is especially so,…

Death: To Know or Not To Know?

I don’t know how common this is to wonder, but I’m sure it’s crossed most people’s minds at some point. I know it has mine occasionally throughout my life. When and how will I die? And do I really want to know? I think it’s fair to say most people want to live a nice…

An ALS Day

Today didn’t go as planned. It’s been an ALS day. It is Saturday, the day Mom and I do something. We had planned to go see, The Great Gatsby, this afternoon but I had to cancel. I had a rough night all night. I puked in my sleep. Not a lot, but it  woke me right…

Validation of Biomarkers Study in ALS

Yesterday I went to Emory for my Validation of Biomarkers study in ALS. It was also the first time being filmed for the documentary at Emory. Matt Ruggles was filming and I barely remember seeing him there once we were in the room. When we were led to the small exam room, I at first thought it…

My Mother’s Day 2013

This is my 2013 Mother’s Day experience. I hope all Moms felt some extra love today. I spent time with my Mother and my sister, Julie, at her Mother in law‘s home, Patsy. I feasted on tomato pie, squash casserole, baked potato and okra made in a way I’ve never seen but it was absolutely…

The Trilogy 100

I’ve had the Trilogy 100 for about 3 months now. I wouldn’t want anything else. Now I can’t say I did my research and made the decision after lots of comparisons like with my power wheelchair. This is because I’m at a great ALS clinic where they stay on top of all patients and take…

ALS Documentary: Take One, Action!

Hello to all. I’ve been pretty busy the last couple of days. I’ve always been a routine person, but now I’m on the ALS routine consisting of eating, sleeping, writing, visitors, and range of motion exercises from my bed in a room of bare brown walls. I don’t need to leave my room to shower or to look out of my…

Short Post

I planned to blog more tonight but it’s been a nightmare trying to get my photo page in order. Before I started this site, I used a computer to look something up or shop. Tony’s been helping when possible, but he has other things to work on not to mention I don’t like receiving help….

Vacate The Premises

A little about today…. I was pretty tired most of the day but not a lot of pain. My Mother came over to visit. Before she got here we received a call for a house viewing asking for 4:00 to 5:00. So that went from planning to stay home the whole day to we must vacate the…

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