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A Sticky Situation

It’s been a rough day. When I woke up I felt like I needed to get my mask on right away, I needed air. Because of the full face masks leaking, I’ve been wearing my nasal mask only, even at night. It keeps a great seal and It’s very easy to take on and off….

ALS Minute By Minute

I have several posts in mind I want to do, but I want to do them right. I want to have the facts straight. The last thing the ALS community needs is more false information floating around. I have no planned post today so I’m just going to let my inner-thoughts flow. Everybody has good days and bad days. With…

A Gain For A Loss

OK, at the end of yesterdays blog post, I mentioned lifting up a bit. I feel like adding a little sugar to the spice. When I was first fitted for my AFO, It was so nice to be able to walk with a barely detectable limp. This came with a price I was very willing to pay,…

My Face

Hello again, I’m back. Hopefully I can keep today’s post an easier read. I do want to pick back up on something I didn’t get to last night.  My face.  I’ve known since diagnosis ALS affects the voluntary muscles, but I never really thought much about the face. I’ll give myself a break on that since I was thinking more about muscles…

Progression… Always Wondering What’s Next

Hello, I feel like touching on progression of ALS today. First of all ALS definitely has it out for the right side (dominant side) of my body, more than my left. Sometimes it’s hard to know for sure which really began first the top or bottom. However the move upward is faster and more severe. I remember…

My Family Knows Now

HEADS UP –  This post is some info about my family. Not much ALS related but I hope you still read on. I did it!   I told my family about my blog starting with my parents in person. My Mother gave me her 100% approval and thinks it’s great for me. What a relief. She did get in touch with me after…

Deciding when to tell… a rambling post

I feel like I’m living a double life here and will be outed at any moment. I’ve always been a private person. My family is used to it although sometimes they’ve accused me of bordering paranoia. So many people have begged me to join facebook. I hate facebook. Tony does have an account so if…

House Cleaning

Hello, I decided to use my energy today to clean up and add a little to the site. Please take a look around and don’t forget to help spread the word about thealsexpress.com I appreciate it. Until next time, take care April  

One of those ALS days…

Hello to all. Lets get on with it here… One thing that has proven hard to get through my hard head is that it’s hard to plan ahead with ALS. I’m a planner by nature. I like to know what I’m going to be doing, how long I’ll be doing it and when. I guess that makes…

Bed Bathe and Beyond…

I think I can… I think I can… I think I – of course ALS will get the last word. This is the story of me hanging on to some independence. Since I can no longer walk, I use my transfer chair to go from bed to shower, toilet, and vanity sink where my husband is getting used to…

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