Tag archive: MND

Facing Who I Am

I’m finally writing a post. It’s not one I’m looking forward to. I’m facing who I am and putting it out there. Sure, I can nice it up a bit, but I said I was going to be honest about myself from the beginning and I see no point in putting a fake persona of…

Swimming the Solent

It’s been a while. I just have to write when the need comes and I feel the need right now. I ask you please bear with me for any mistakes as my thinking can be a little foggy right now. It’s likely I’ll make a mistake, but no harm, right? If you can’t figure it…

900 Words To Say I Can’t Blog

I’ve been having a very difficult time getting a post out. I’ve also found it difficult to reply to comments. It’s been very frustrating because it’s something I have found a lot of comfort in as well as strength and motivation. Looking at the big picture, I guess it’s not so bad. I began this…

Oh Snap!

Most people snap their fingers without thought and don’t lose the ability. If the ability is lost due to a disease like ALS, it doesn’t return. I lost that ability because of weakened muscles in my right hand. Hey ALS: I can do it again – Oh Snap! I could still snap my left side but…

My Feelings

I need to let out some feelings I’ve been dealing with. I’m just going to let loose. Any writing order out the window. I’m writing my feelings, my thoughts as they come to me right now. Just go with me, please. I was very lucky to have my neurologist offer me the opportunity to participate…

My First Real Outcome Measurements

The outcome measures I’m writing about were documented, but have not been officially published. I had my first real outcome measurements since my stem cell surgery last week and the feelings are difficult to explain. Overwhelmed doesn’t do it justice. I’ve mentioned better dexterity in my hand allowing me to sign and communicate much easier…

Wheelchair Accessible Van

I’ve been dealing with quite a bit lately, a lot having to do with ALS and some issues totally separate. When you have ALS, it can consume your life with symptoms, adaptions, planning ahead, money issues. The list is endless. At the same time life is still happening outside of ALS and even a healthy person’s life…

My First 2014 ALS Blog

The past few blogs have been progressively difficult. After deleting several long drafts I’ve decided to just sit, write and publish. I hope it comes together enough to be worth reading. This used to be more like a public journal of my personal experiences and feelings while dealing with ALS. The stem cell surgery changed…

It’s Already December

It’s hard to believe it’s already December! My surgery already seems so long ago. Before surgery the only holiday I could even think of at all was Thanksgiving. Actually, it was hard to think of anything other than the surgery itself, especially after the date was set. So needless to say, as I have been…

Post Stem Cell Surgery – Pics & Video

Alright, another week post surgery and I’m feeling so much better than last week’s post. I have much more range of motion in my neck. Even if I do something that aggravates it, the pain is much less intense and only lasts a short time. It’s still a little difficult moving upper body forward and back…

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